Reflection: My son isn’t a Hero, He’s a Person

April means Autism Awareness and Acceptance month and I felt compelled to write about a realization I recently had about my oldest son, D who has autism. My realization was that he’s not a hero, he’s a person. I want to say that first and foremost, I got permission from him to write this post about him because at some point in the journey, it became his story to tell. I also got his permission because I’m trying to be better about boundaries when it comes to writing about the people in my life. I could actually write more about boundaries but that’s another blog post.

My oldest son was diagnosed at the age of 5 and I was 22. I’ve written about him in a previous post about how he was my hero because of all of the obstacles he’s conquered and how proud I am of him because of that. Here’s that blogpost:

My Amazing Hero

One thing that I didn’t address in that post was how receiving this diagnosis meant me receiving a new identity, a mom with a child on the autism spectrum. Or we are often called autism warrior moms or whatever is trendy at the time. From the age of 22, this identity was deeply ingrained within me. I’ve lost count of how many articles or books I’ve read about autism. I’ve lost count of how many parent teacher conferences or IEP meetings I’ve attended having to fight or advocate for services for my son. I’ve lost count of how many therapists or counselors my son has had. You get my point. Being a mom to a child with autism is not easy. It’s hard, really hard. I’ve mentioned before how my child started to flourish between 3rd and 4th grade and he went on to be successful in his academic career throughout high school. Throughout all of this, I didn’t realize it but I put my child on a pedestal. I don’t know if it was the BPD or me being super excited about my son’s progress. Don’t get me wrong, it was a good and healthy thing to encourage my son and support him; but at some point idealizing him put an unhealthy amount of pressure that started to feel like a burden. I won’t say what happened next in this story but I will say that he’s now thriving as a regular 23 year old. I realized this week that at some point I stopped being an autism warrior mom. I think that I understood this sometime in 2016 after my son turned 18 but really accepted it this week. It’s weird when I used to start talking about myself, being a autism warrior mom would be one of the first things I would share and now I don’t feel the need to. When someone who knows me and my son mentions he’s quiet, I’m just like “well he’s just shy”. Like I first mentioned in this post; it’s just no longer my story to share. When I talk about my son, I just say “ he’s D, pretty awesome most of the time but kind of annoying at times.” I’ve also let go of this idealization of him I had. I still admire him and love him for who he is but he’s not a hero; he’s a person.
He’s a person with his own set of issues and insecurities. He’s a person with goals and plans for the future. And talking to him, he wants to be seen that way. I also want to mention that I’m not speaking for all the moms with children with autism, I’m speaking just for myself. Getting here has been difficult but it’s been an important part of the process of me becoming not just a better mother, but a better person as well.

me and my oldest son sometime in March

Poetry: My Son Throws His Blocks

I wrote this poem in 2006 about my middle child who was toddler at a time. He’s actually my birthday twin and very much like me personality wise.

My Second son as a toddler

My son throws his blocks

They hit me like rocks

So much damn temper

Within my little fellow

Little does he know

About the bad people that sew

many, many spiderwebs

to put you under duress

and he throws and he throws

Like life’s unexpected woes

Those wooden things hit my head

he won’t listen to what I say

He sure has an arm 

for knowing how to harm

In this just a phase

in this life of a maze

Finally he stops and looks

It is another tantrum in the books

I think this is a preview 

to his ever changing mood

Turning 40

My last year in my 30s ended up with me being an essential worker during a pandemic while being a mom of three and being involved in two different romantic liaisons. I could look back on what I have not accomplished in my life and be sad but instead I’ll focus on my growth and my goals for the next year. I’ve made a lot of progress this year both financially and personally. I’ve improved my credit score by 100 points by working 2 jobs and paying debt off. Also for the first time in my adult life I’m in a healthy romantic relationship with a wonderful man. This time last year I didn’t think either was possible and at times I don’t feel like I deserve all of the good fortune in my life. As I look forward to my next year and my new decade, I hope to really focus on becoming a confident driver, submit my writing everywhere and try to get published, and continue to work my two jobs to save up to buy 2 houses. I’m kind of excited for how the next decade looks like. My thirties taught me I can survive what I once thought would not be survivable. During my thirties, I felt myself merely surviving. In this next decade, I look forward to thriving.

February 22, 2021

Poetry: Your Little Game

I wrote this in October of 2002 about my first son’s bio dad. I had a lot of residual resentment for my son’s bio dad. Therapy would have helped with processing processing the trauma but at least I had poetry.

my truth, my trauma

The thought of you never escapes my mind
not even for just one night
Your little game has caused me a lifetime of hurt,
resentment, and pain
Now I’ll never be the same
And I will forever ask myself
Why is it me and our innocent child
the ones to suffer for your thoughtless actions?
Him, without someone to call dad
and me,taken away from my youth
Forced to grow up too fast

Poetry: To My Baby Daddy

I wrote this in 2002 about my first son’s bio dad. It kind of sucks that this situation happened BUT at least I got some salty poetry out of it. Lol.

triggered

Hey Mr.Donor man
How does it feel to have your son
Learn you never wanted to come
That you talked big shit
and never meant any of it
That no matter how hard I tried for him
you never wanted to be a daddy to him
That you were so fucking lame
You couldn’t even give him your last name
That to you, his mom
was just good fun
That you’re a fucking coward
you never dared to be his father
Don’t worry though
He’ll always have my love
And without you, he’ll be just fine
One day I’ll meet a man who is kind
Who will love him and I
and will want us in his life
Who’ll be glad to take the place of
The man who couldn’t give us love
Who will come to his defense
when things get tense
Who will stick around
And won’t bring him down
Who will finally be
The dad you never wanted to be

Poetry: Three Years Too Late

I wrote this poem about my oldest son’s bio dad in February of 2002. A lot of residual resentment I had towards him was because he wouldn’t step up. My empathy button for him was really broken for him and in this case maybe it needed to be.

it be like that sometimes

Three years too late
You’ve decided to embrace your fate
You’ve decided to recognize your mistake
And fill my ears with apologies
For not accepting mine and his existence

So now you feel like playing dad
And expect me to forgive and forget
about the misery you left us in
The years of being a fucking deadbeat to him
Please do what you do best
Walk away and put this situation to rest
For he doesn’t need
A false wannabe daddy
Who will cause him harm
in the long run

Poetry: Fun is Gone

I wrote this in 1998 about my pregnancy. I wrote this after telling my traditional and catholic parents I was pregnant. I was six months along and went into a deep depression afterwards that lasted maybe a year after the birth of my first child. Yes, I was a teen mom with post partum depression and there wasn’t much anyone could do at the time. I still got up to go to school and took care of my child. My life was no longer just about me, I was responsible for another life. Maybe that’s when I learned to mask so well. I learned to show up no matter what. On the upside, I had really supportive parents who were for me when they could have abandoned me. On the downside, some of my closest friends did. Sometimes I wonder if going through something this traumatic did stunted my maturity in some areas.

me at 17 around the time I wrote this poem

No more fun
No more just “lying in the sun”
Dirty diapers and Barney
Will sum up the next few years for me
No more hanging out with friends
No more having tons of boyfriends
Strollers and snotty noses
Will be how my adolescence closes

Poetry: Lost Concentration

I wrote this in 1998 when I was pregnant. I was kind of denial at the time but also knew what was happening. It was a weird and traumatic time in my life. I was barely 17 and coming to grips to how drastically my life would change. I will say that after 23 years, my son’s birth was definitely a trauma turned into triumph. I don’t think I knew what real love was until I had him.

me on my 17th birthday around the time I wrote this poem

I can’t concentrate
knowing my fate
I’d rather die
Than having to keep up this lie
I’m gaining weight
And my period’s 3 months late
I’m having cravings
Pretty soon everyone is going to be staring
I don’t know how to cope
I’m starting to lose all hope
I don’t wanna live anymore
I feel like I have nothing to live for
What am I to do?
Where or whom do I go to?
My life is ruined
All this, just by letting him in

Unexpected: Pregnancy Loss

On July 27th, 2010 I  was in the room with the ultrasound tech and she put the gel on my belly. I was there to hear the sound of my baby’s heartbeat for the first time. I had waited a whole two weeks to hear it since I had booked the appointment. My boyfriend had dropped me off at the doctor. I was alone and the anticipation was killing me. The ultrasound tech was moving the wand every which way and had this weird look on her face. I asked her if everything was okay. She told me, “I really need to get the doctor”. I pleaded with her to tell me what was wrong. And she said, “I can’t find the heartbeat” I was in shock and numb. Then she told me to go out to the waiting room and the Dr would come get me. I remember how the waiting room was full of pregnant women and I started to sob hysterically. Thankfully a receptionist took pity on me and took me to another sparsely populated area. The Dr came and got me and told me the embryo stopped growing at 8 weeks and I was supposed to be 10 weeks along. She showed me the ultrasound. She also gave me a choice -either a D&C or let the miscarriage come naturally. I had just started a job in June and hadn’t accumulated much sick leave so I opted to have the D&C. I had all of these feelings of shame and guilt because I had seriously thought about terminating the pregnancy and I wondered if I had wished it true. I felt guilty because I had gotten blackout drunk a day before finding out I was pregnant. Also, I felt like a failure because my body had not done what it was supposed to do. I felt like somehow I deserved all of this pain and that God was punishing me. Getting through the rest of that day and putting up my facade of strength and having to tell my 2 kids along with other family members and friends was horrible. 

The next morning I went to have a D&C and I woke up crying from the procedure. The nurse that was next to me told me that everything happens for a reason and to trust God. “Everything happens for a reason” and “Trust in GOD” and “It wasn’t the right time” would be among the  few sayings that I would get from well meaning friends, family, and co-workers. I buried my grief in exercising and eating healthy irrationally believing that it was my body’s fault that I had the miscarriage. It didn’t help that my boyfriend was kind of blaming me as well because of that whole blackout drunk incident early in the pregnancy. Even though the logic in my head told me that pregnancy loss is a common occurrence that happens to 1 in 4 women with no real rhyme or reason for most of those pregnancies;my irrational thoughts took over for a bit. What helped me through the grief other than exercising was joining a support group and being able to process that grief and feel validated in my feelings with other people that had experienced the same thing. An experience like this changes you in a way that you remember who you were before the experience and after it.  Obviously I’ve healed from that experience but I still experience some sadness on that day. One interesting thing that happened 3 years ago when I came to work on July 27 was that there was a random “Happy Birthday” balloon by the entrance of my office building. I took it as a positive sign from the universe. 

I share this story because it is important to fight the stigma associated with pregnancy loss. It is also important for others to feel like they can share their stories without being judged.